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Electronic health records

Conference examines patient’s role in eHealth

TORONTO – One Patient, One Record, a symposium to promote the patient’s role in eHealth and electronic health records, will be held at the University of Toronto on April 21, 2009. The chief organizer is Kevin Leonard, PhD, an associate professor at the university.

The unique event will bring together key healthcare decision-makers and delivery personnel in direct communication with highly motivated and informed patients. Further, the objective of the day is to create a firm deliverable: an action plan to move the Province of Ontario forward regarding patients accessing health information.

Even though patients are the fundamental foundation of the healthcare system, they have seldom been viewed as more than a ‘by-product’ or ‘side-effect’. To illustrate, patients are not typically involved in setting healthcare policy; conducting and disseminating research; coordinating patient networks; providing or managing individual care; and evaluating the performance and outcomes of varied healthcare delivery plans.

Innovative research that focuses on putting information in the hands of the consumer in healthcare – the patient – is now attempting to achieve two major objectives:
• Bring the healthcare system in line with many other industries by incorporating consumer inputs;
• Improve the adoption of information technology, and thereby increase eHealth benefits, by combining the efforts of healthcare providers with the patient group.

Patients attending the symposium have been recruited in several ways: contacted through disease associations and foundations, cross-patient representatives and communications to the public at large through health providers and the media. Each patient must apply to attend – they will submit a two-paragraph outline describing their reasons for wishing to participate in this symposium. A committee will review the applications and select the top 50.

Healthcare personnel include providers, administrators, researchers, academics, vendors and funding organizations. They have been invited along with other selected healthcare representatives to form as representative a group as possible in terms of perspectives, organizational relationships and geography. The symposium will have 50 attendees from this group.

One of the objectives of the symposium is to to begin the dialogue between patients and the healthcare system to arrive at One Patient, One Record. Ultimately, we believe in developing an electronic health record for all Ontarians that can be accessed by the continuum of healthcare providers, as well as the patients themselves, which will then lead to improved health outcomes.

We anticipate an attendance of 100 people (excluding speakers and support personnel). The symposium will be set up with 10 tables with each table comprising five healthcare personnel and five patients. At different points during the day (see the Agenda in table below for more detail), we will have discussion on five previously prepared questions. After each question has been discussed, each participant will be asked to confidentially vote. Votes will be tabulated and reported back at the end of the day.

The five questions will cover the areas of access, content, use, privacy and outcome measurement. The answers will yield a framework for an action plan on how to move forward in the development of one electronic health record accessible to both patients and healthcare providers.

Welcome – Kevin Leonard: “The Patient Perspective”
Department of Health Policy, Management and Evaluation
University of Toronto

9:00 am – 9:30 am
Keynote – David Wiljer: “The Creation of INFOWELL”
Princess Margaret Hospital, University Health Network

10:00 am – 10:30 am
Marianna Epstein: “Patient Gateway, a tethered Patient Health Record (PHR)”
Partners HealthCare, Boston

10:30 am – 11:00 am
Daniel Z. Sands: “The Patient and the Physician Face Illness in the e-World”
Cisco Systems, Beth Israel Deaconess Medical Center, and Harvard Medical School

11:00 am – 11:30 am
George Tolomiczenko: “The Role of Foundations”
Crohn’s & Colitis Foundation of Canada

11:30 am – 12:00 pm
Ken Anderson: “Privacy Issues surrounding PHRs”
Office of the Information and Privacy Commissioner of Ontario

12:00 pm – 12:45 pm
Lunch Break and Discussion of next 2 questions

12:45 pm – 1:15 pm
Jonathan Tritter: “The UK Experience – Involvement in
healthcare and wellbeing”
NHS Centre for Involvement

1:15 pm – 1:45 pm
Doug Gosling: “Empowering Patients”

1:45 pm – 2:00 pm
Break and Discussion of last question

2:00 pm – 2:30 pm
Joe Cafazzo, Sandy Logan: “Remote Patient Monitoring”
Centre for Global eHealth Innovation,
University Health Network

2:30 pm – 3:00 pm
Vaughan Glover: “A People Centered Health System”
Centre for People Centred Health

3:00 pm – 3:30 pm
Dianne Carmichael: “How do I get a Second Opinion?”
Best Doctors

3:30 pm – 4:00 pm
Final Discussion – Reporting on Votes and
Action Plan

For more information, see: